We’ve been where you are and we’re here to help.
Chuck, living with the polyneuropathy of hereditary transthyretin-mediated amyloidosis (ATTR) and taking TEGSEDI®
Connect with support
The AKCEA® CONNECT patient support program can help empower you to keep living life on your own terms
You’re not alone in managing this disease; count on AKCEA CONNECT to be your partner and help support you during your treatment with TEGSEDI
With AKCEA CONNECT, you will be assigned a dedicated Nurse Case Manager who can help you learn more about your disease, access your treatment with TEGSEDI, and be empowered in your healthcare.
We share disease and treatment knowledge with you, your caregiver, and your family.
We provide assistance with insurance coverage assessment and funding questions.
We can connect you with resources and patient support groups to help you manage your disease while continuing to live a meaningful life.
Team TEGSEDI Mentors
Talk to a Team TEGSEDI Mentor living with the polyneuropathy of hereditary ATTR amyloidosis
Mentors who are also living with the polyneuropathy of hereditary ATTR amyloidosis and taking TEGSEDI are here to share their experiences
Team TEGSEDI is a phone-based support program helping patients living with polyneuropathy
of hereditary ATTR amyloidosis across the country. Speak with a Mentor who understands what you’re going through and is ready to lend his/her support and encouragement as you start TEGSEDI.
Your AKCEA CONNECT Nurse Case Manager will match you with a Mentor whose perspectives and experiences are similar to your own.
Team TEGSEDI Mentors can talk to you about topics such as
- Emotions and experiences with starting TEGSEDI
- Personal experiences living with the polyneuropathy of hereditary ATTR amyloidosis
- Lifestyle tips
- How to find support and resources
Please note that Mentors are not able to discuss treatment with other therapies, effects of treatment with TEGSEDI, or provide medical advice.
Connect with your dedicated Nurse Case Manager and Team TEGSEDI Mentor by contacting AKCEA CONNECT online or at 1-866-AKCEATX (1-866-252-3289)
For someone who has just been diagnosed with the polyneuropathy of hereditary ATTR amyloidosis, my advice would be to find people in your area that you could talk to, or doctors who can take care of you. There is hope, so keep that in mind.
Sharell, wife and caregiver of someone living with the polyneuropathy of hereditary ATTR amyloidosis
I decided to take TEGSEDI not just for myself but for my family. I hope that now they’ll know what to do with the disease if they experience polyneuropathy caused by hereditary ATTR amyloidosis in the future.
Chuck, living with the polyneuropathy of hereditary ATTR amyloidosis and taking TEGSEDI
I am thankful that my neuropathy symptoms have stabilized.
Mike, living with the polyneuropathy of hereditary ATTR amyloidosis and taking TEGSEDI